Monday, September 13, 2010

Long time, no update


I haven't given an update in a while.  It's been overwhelming and scary.  We were supposed to come home Friday, but that didn't happen.  Lenwood began having bradys late Wednesday.  After some investigating , they've found that he has multiple kidney stones in each kidney.  They haven't calcified yet so they think they can dissolve them and that hopefully they aren't hurting him.  The think the stones are a symptom of whatever is going on with him and they believe it's related to Teague.  Both had the ascietes (abdominal swelling) and both have low IgG immunoglobin.  They think it's too coincidental to not somehow be connected.  A pediatric nephrologist(kidney specialist) came to see him.  He is very intrigued and is currently consulting a colleague who is a nephologist, geneticist and microbiologist.  He said that she's the most brilliant person he's ever met at figuring out unusual diagnoses.  We are hopeful that we might finally have answers for Lenwood and Teague yet terrified at what those answers might be.
Lenwood has also been struggling with weight gain - too much.  He gained 28 ounces in 12 days.  They like to see them gain 3-7 ounces a week at his age.  He's on a strong diuretic and is losing a little.  His current weight is 7 lb 7 ounces.  His highest weight was 7 lb 10.6 ounces.
 Don't have any clue when we might get to bring him home.  Today (Tuesday) is his due date.  He's 40 weeks and should be ready to come home, but he's not and that's very scary to me.

Please continue to pray for us. We appreciate you all so much!

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